Bewertung: 0 von 5 Sternen
0 Bewertungen
Wird geladen
KB![]()
author
Karen Fisher Ball
Karen Fisher Ball is The Warrior Mama. She's made it her life's mission to encourage research and discover treatments for Sturge-Weber syndrome (SWS), a vascular malformation neur...mehr sehenKaren Fisher Ball is The Warrior Mama. She's made it her life's mission to encourage research and discover treatments for Sturge-Weber syndrome (SWS), a vascular malformation neurocutaneous disorder that is characterized by a congenital facial birthmark, glaucoma, and neurological abnormalities.When Karen's daughter was diagnosed at birth with SWS, few resources were available for families and caregivers. No support groups, guidebooks, websites, or even brochures on the complexities of this unique condition. A guide to living with SWS simply did not exist. In fact, many medical practitioners had no experience with diagnosing or treating children with SWS.Inspired by faith and driven by determination, Karen blazed her own trail and created the Sturge-Weber Foundation to battle SWS. She embarked on a fundraising and research journey through the medical community and the pharmaceutical industry that has helped people worldwide.weniger sehen